The British neurotoxin network has identified 13 centres in UK, which are available for treating patients with spasmodic dysphonia. This condition is a dystonia of the laryngeal muscles, which responds well to injections of Botulinum toxin into the vocal cords.
Spasmodic dysphonia is a rare condition, which manifests with speech difficulties, either a strangulated voice or a whispering, breathy voice. The patient with spasmodic dysphonia, like for many rare conditions, has to jump over a lot of hurdles:
First hurdle is to find a voice specialist (ENT consultant) or a dystonia specialist ( a neurologist) to get diagnosed; often the patient is told that it’s stress related and that it will go away with speech therapy sessions.
Second hurdle is to find a centre where to get treated, not too far from home, as the injections have to be repeated regularly.
The British Neurotoxin Network, in collaboration with the Dystonia society have gathered specialists involved in the treatment of spasmodic dysphonia the 2nd May 2014 at the Royal Society of Medicine in London. ENT voice specialist, speech therapists, neurologist, neuro-physiologist were there to present their practice and to share their experiences. This treatment centre UK map has been posted on the BNN website to improve access to treatment for patients.
Hope it will make life easier for patients and for colleagues when referring patients.